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Data Core |
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The HIV Data Core
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The Registry is a large-scale prospective
database made up of information gathered from HIV-infected participants who
visit our local health service facilities (University Hospital, Immunology
Clinic). This registry became operational in early 1992 and currently boasts
1,900 patients registered as of September of 1997. The registry’s overall
goal is to study key elements associated with the progression and
manifestation of HIV infection disease on the island of Puerto Rico.
Information on risk behavior history, sociodemographic factors,
immunological markers, lab values, presence of clinical conditions,
psychological stress factors and institutional profile is collected through
an initial interview. Follow-up interview are conducted at six-month
intervals. |
María
Gómez Ph.D. Coordinator |
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Tel:
787-787-8710 ó 787-787-8722
mgomez@caribe.net |
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In the HIV Central Registry, the most
important component of the Retrovirus Research Center, emphasis has been
stressed for the improvement of quality strategies and data management.
Novel approaches, as discussed with Dr. Janet Saint Lawrence, are proven to
be essential for the accomplishment of the Registry’s objective.
A research strategy has been implemented for all patients with an unknown
status through a matching program with PASET database and the systemic use
of the Immunologic Clinic and the Hospital records. This has permitted us to
detect an rectify errors within the socio-demographic module, decrease the
rate of patients without and identified risk from approximately 18% to 7%,
update mortality data of 175 patients, verify systematically the death
certificates of AIDS patients and identify the number of patients that are
not actually in the initial baseline data bank. In addition, 203 patients
have completed new pilot tests conducted with small samples (as the Beck
Depression Inventory and the Derogates Stress Scale), which have been
incorporated in the data collection. |
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Team
Members |
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Miriam Velázquez, MSPH
Ms. Gisela Cestero
Wanda Marín
Magaly Torres, BBA
Glenda L. Ortiz
Doriz Báez
Angel Mayor
Heidy Ortiz
Johanna Maysonet |
Robert
Hunter, MD
Eddy
Ríos, Ph.D.
José
Rivera Del Río, MD
DianaFernández, MSPH
Wanda Figueroa, MD |
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